ON INTERNET MEMES AND OTHER UNQUESTIONED ACTS OF BIGOTRY

Perhaps by now you’ve seen the Internet meme making the rounds of a drawing of a guy in a wheelchair. He’s looking back over his shoulder, a sad, pathetic expression on his face. Surrounding him are the following words: “If you're (sic) spouse became disabled for the rest of there (sic) lives, would you still be with them???”

Yes, dear reader, it is taking all of the strength I can muster to resist calling the meme’s creator a moron incapable of knowing the difference between "you're" and "your" and “their” and “there,” or even knowing how to use a software grammar check function. And, yes, I am irritated with the use of the pronoun “them,” as if the question poses the hypothetical situation that this is a pluralist marriage that includes multiple partners who “became disabled” all at once. Perhaps it’s implying the crash of a plane on which the multiple marital partners were flying, or they all contracted a rare tropical disease while on safari together.

I also believe it is quite likely that anyone who uses three question marks in a row probably dots every letter “i” with a tiny heart. For that reason alone, the meme’s creator should be placed a stockade in the village square and bombarded with rotten produce.

 

Nevertheless, it’s not the meme’s grammatical atrocities that have inspired me to write this post. It is the sheer butt-puckering bigotry of the question being posed. Why is it an acceptable question worthy of an answer?

Would it be appropriate to ask: “If your spouse sent in DNA to 23 and Me and learned he/she had African ancestry, would you divorce him/her?” Or “If your spouse told you his/her grandparents emigrated from Uruguay, would you make him/her relocate permanently to the guest bedroom?” Or perhaps “If your spouse converted to Judaism, would you toss him/her off a cliff?”

I’d like to think that most decent human beings would be appalled by questions about whether a spouse remains worthy of love even if he/she is of a different race, religion or country of national origin. Yet when it comes to disability, many people – such as those that actually answered the question on Facebook – feel it’s fine to weigh the option of giving walking papers to the person they married.

I’m not sure whether to be pissed off or profoundly sad that a quarter century after the passage of the ADA – the most comprehensive civil rights statute ever enacted to protect disabled folks from discrimination – societal attitudes remain in the Dark Ages. We continue to deny that illnesses and health issues are inextricably part of the human condition. We still cling to hierarchies, to notions of “us versus them,” to assigning value to other human beings based on their ability to meet an often unattainable ideal.

Perhaps I should buy a more comfortable mattress for the guest bedroom.

KYLIE JENNER: GIMP GIRL WANNABE

By now, you’ve probably seen the fruits of the Kylie Jenner photo shoot in the current issue of Interview magazine. The teenage reality TV star is dressed provocatively in leather bondage gear. In some of the shots, even her delicately-curved derriere is exposed.

But with all of the photos we average folks are bombarded with on the Internet – celebrities posing in little more than body paint and glitter, fashion models striding nearly nude down catwalks – Ms. Jenner’s photos are not terribly remarkable. You, dear reader, have probably seen much more revealing stuff on your friends’ Instagram accounts.

So why am I even mentioning this? Well, it seems that Ms. Jenner has revealed something intimate about herself that goes beyond bare skin.

Kylie Jenner is a gimp girl wannabe.  

In two of the shots, Kylie is wearing a black leather strapless onesie and a black leather collar while sitting in a gold-tone manual wheelchair.

Looking at the shots left me flummoxed. You see, I thought Larry Flynt was the only gimp out there rocking a gold chair.

Then I tossed that thought aside. I mean, if anybody else could acquire a golden gimp-mobile, it would be a member of the storied Kardashian-Jenner family.

Next, my eyes went to the expression on Kylie’s face. In one photo, she stares off into space as if she’s perhaps experiencing a petit mal seizure. My cynical side wanted to dismiss this as the typical empty gaze of a high fashion model. You know, that look that says “I am insanely gorgeous and make $10 grand an hour, yet I’m so misunderstood.”

But then I realized that Ms. Jenner is really trying out the look of someone who has a disability. She wants to live it, to feel it.

Kylie’s tired of her incredibly privileged, affluent, non-disabled life. She wants to know what it’s like to have precarious health, to struggle to find employment yet keep her government benefits so she can pay for attendant care. She longs to spend weeks trying to find an accessible apartment she can afford, only to have the landlord tell her that the “no pets” policy means she can’t bring her service dog. She yearns to sit in the rain waiting for a bus, only to find that the one that stops has a broken lift and she has to wait another 20 minutes for the next one.

Kylie Jenner, I pronounce you an honorary gimp girl. Welcome to the club.

Face of Failure, Symbol of Shame

Back when I was a kid, it haunted me.

It was always lurking in the back of my mind. It weighed on my shoulders and jangled my nerves.

It was the stick with no carrot that my parents used to motivate me. Its sinister proximity was held over my head, the motivation to do 10 more minutes of exercise. To walk 10 more feet. To try just a little harder.

I feared vampires but I was much more terrified of it. Vampires vanished with the sunrise, but this dastardly beast was always just around the corner.

It was the face of failure and the symbol of shame. A stain impossible to wash away. Once its lamprey-like jaws latched on, it consumed you. It became you. You were marked for life, and what a pathetic life it would be.

You see, my Nosferatu, my demon, the thing I feared above all others was a wheelchair.

I never consciously admitted it to myself, but I think I knew as a teenager that full-time use of a wheelchair would have made my life a whole lot easier, and undoubtedly richer. The precariousness of my walking and the crushing fatigue it caused meant I could expend energy only for essential movement like walking to class.

In high school, I went to the restroom once a day or not at all. I simply couldn’t afford the pain and extra energy needed to make the trip. Holding it was a better option for me, if not for my kidneys. Activities like writing for the school paper or yearbook were impossible. To participate meant more walking. And that just wasn’t gonna happen.

Back then a chair was acceptable only for those labeled “profoundly disabled,” individuals who’d been discarded by society. Even the elderly shunned wheelchairs. My grandma would rather have worn Hester Prynne’s scarlet letter on her bosom than ride in one.

“I hope you at least have two fingers you can still move to run a wheelchair!” my mom once shouted after a therapy session when she thought I hadn’t tried hard enough. (I didn’t know how to break it to her that a power chair is controlled with a joy stick, not “forwards” and “backwards” buttons.)

With adulthood, my childish fears faded. I shook away the terror of needing a chair, but it took much longer to shake the shame. I still believed I was lucky that the non-disabled allowed me into their stores, restaurants and theaters, even if it meant coming in the back door through the boiler room. I should count my blessings that I was allowed to sit amongst them, even if it was in the back row.

It took decades to see my wheelchair as a device of empowerment rather than a burden of failure. It was no longer an albatross around my neck but a raptor that swept me off to college, enabled me to have a career and a meaningful life.

If you’re young and disabled, don’t let ablecentric troglodytes define your life and how you should live it. Don’t buy into their bigoted ideals. Reject their pathetic need to make hierarchies and pigeonhole you in them.

If there’s one thing I’ve learned, it’s this: going through life in an upright position is highly overrated.